Page Section: Centre Content Column
Networking
Sharing
resources for networking
Strategic
Networking
Breaking through
barriers
Network
meeting with a DHB Interpreting Service
Networking via
radio
Expert knowledge
about local information
Networking at a
day service
Networking
creates education opportunity for Deaf
Education &
networking reaches core community groups
Strategic
Networking scoops up three education sessions
Residential Visits
to Children's Homes
Residential visits make access to an
advocate easy for residents
Value of networking
First
visit to residential facility
Complaint
results in strengthened networks
Familiarity through networking
assists consumers open up
Networking with a health
provider leads to education
Opportunity for training on the
Code
Assistance for social worker
Establishing a network
of local advocates
Networking Chatham Islands
Style
Networking in residential
homes
Using the CAB as an established
information hub
Working within a local
interest focused network
Sharing resources for
networking
An advocate responsible for a large geographical area
discovered that another service provider also covered the same
area. After making contact with the service provider, the two
people met and arranged to travel together.
It transpired that both needed to visit the same providers
with the exception of three. Travelling together not only meant
better utilisation of resources but provided an opportunity for
each to learn more about the service the other
provided.
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Strategic Networking
An advocate contacted a clinical service manager (CSM) to
arrange to meet with her. The advocate was keen to discuss her role
as well as the visits to the residential homes the CSM was
responsible for. The discussions not only focussed on the role of
the advocacy service but also on the organisation's plans for the
future. This included the building of some new houses where
residents could be cared for rather than moving to rest homes in
their old age.
Following the meeting the CSM took the advocate to two day
bases, one for older people and one for young people where the
advocate was introduced to the residents. The CSM then took the
advocate to the homes of residents who were not present at the day
bases.
The advocate and CSM agreed to meet on a regular
basis.
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Positive networking
with a provider
An advocate met with the area manager of a large
disability service to introduce herself. The meeting provided an
opportunity for them to be able to identify each other and to
discuss planned visits to residential disability homes in the local
region. At the meeting the area manager provided details of the
homes and day bases in the area and said he would be contacting his
local managers so they would know what to expect when the advocate
visited.
Following this initial meeting the advocate made contact
with the three day bases in the area. They were all were very
receptive and invited the advocate to visit. It was agreed that in
the first instance visits will be to introduce herself and the
service to the consumers and the staff and leave information for
both.
The advocate's aim in visiting these centres is to build a
rapport with all and to establish times when it would be
appropriate to go back and provide education on the Code and
advocacy to both consumers and staff.
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Breaking through
barriers
Maori Mental Health ~ Networking
An advocate decided to make a cold call to one of the
large Maori Mental Health Organisations. To his surprise he was
unable to enter the premises as the only entrance was through a
large locked gate that was unmanned. Prior to visiting the
facility a second time he called ahead to let them know of his
pending arrival and asked that the gate be unlocked. The
organisation obliged, but once inside the gate he was told he could
not see anyone as he needed permission from their
headquarters.
Upon his return to the office the advocate phoned the head
office and was told the manager was too busy to speak with him.
Undeterred by this response, the advocate proceeded to explain the
purpose for his call.
He said he was keen to adhere to and initiate
whakawhanaungatanga, and that over the years of his mahi he had
found taking care of tikanga and kaupapa had assisted him in
understanding others' mahi and helped establish professional
relationships. He was still not given permission to visit the
facility or an appointment with the manager.
When the opportunity presented to accompany someone else
to the facility the advocate jumped at the chance and as a result
was able to take part in the whakatau.
As a result, when the advocate later contacted the manager
a meeting was granted, and after discussing whanau and their
respective mahi the advocate was given approval to visit their
residential home any time.
Network
meeting with a DHB Interpreting Service
An advocate contacted a DHB Interpreting Service
coordinator by email to arrange a network meeting. The
advocate was aware that the interpreting service had had a few
staff changes as well as the local Deaf Community having concerns
on how to access the interpreting service.
The advocate went to the meeting with a prepared list of
questions and met the new interpreting service coordinator. The
coordinator had only been in the role for one month.
The advocate and coordinator discussed how the service
would work and what the requirements were for the Deaf when
requesting an NZSL interpreter. The advocate was also keen to see
who was on their list as an NZSL communicator or interpreter. The
advocate told the co-ordinator that there
were two Interpreting Services they can use to
book NZSL interpreters.
The advocate had a clearer idea of how the service would
work and passed on her findings to the Deaf
community.
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Networking via radio
An advocate was contacted by a local community group in response
to a media release about the Code of Rights Anniversary Day.
They wanted the advocate to speak on their radio show about the
advocacy service and how it could help their listeners.. The
advocate was contacted via email and phone prior to the interview.
A set of discussion points were agreed on but not specific
questions in order to provide a better flow for the
interview.
The theme of the radio show is to encourage the general public
to "Help Yourself" by providing information about community
supports and organisations available.
The advocate spoke about her role as a health and disability
advocate, the Code of Rights and how the advocacy service could
help people with concerns. There were questions asked by the
interviewer about what might happen with a complaint response, what
the options might be for a consumer with a complaint and what sorts
of complaints are covered by the advocacy service.
The advocate spoke about how the advocacy service could put
consumers in touch with other community groups if the consumer's
complaint was outside of the advocacy service's jurisdiction. The
radio show finished with the advocate giving out the free 0800
number for any listeners that may wish to speak with an
advocate.
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Expert
knowledge about local information
An advocate received numerous calls from consumers/family
members around the process for older people entering rest home
facilities. With the ageing population being more active and
better supported, older people are staying longer in their
homes.
However, by the time these consumers are reassessed for rest
home level care, the care required is often more than basic rest
home care. This in itself has its own problems as there is often a
lack of suitable beds which often means that some consumers have no
choice but to take up rest home beds out of the district. They then
put their names down to return when a vacancy occurs.
This can often take months rather than weeks and is difficult
for family members to visit their relative in the out-of-district
rest home.
This was causing stress for the family members that frequently
called the advocate. They often did not know how to find out where
there were rest home beds available, prior
to assessment.
The advocate was able to hear the concerns of the
consumers/family members and then relay the need to contact the
NASC agency who has responsibility for informing consumers/families
which rest homes have beds and at what level. The information
usually isn't known by the consumers/families until the assessment
process starts.
The family members were grateful to have someone to talk to and
find out who they could now contact.
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Networking at a day
service
An advocate visited a day service which offers people with
disabilities the opportunity to learn new skills and participate in
activities while making new friends in their community. They also
provide respite day services for whanau members and people who live
in residential facilities in the area. The purpose of the
advocate's visit was to introduce herself to the duty care managers
and the consumers who were there on this particular afternoon.
The duty manager showed her around the facilities. The Code of
Rights resources were displayed on their walls and brochure holders
were in easily accessible locations.
The advocate sat by one of the consumers while they were taking
a break. They discussed the role of an advocate. The advocate
explained she could be there for them if they had a problem/concern
with any health or disability service they may use.
One consumer knew all about the Code of Rights posters and how
he has the right to be told what is happening when he goes to his
medical appointments at the hospital. The consumers talked about
telling someone if they didn't like something that had happened to
them. They agreed they would tell their whanau or someone else they
liked.
The advocate used the skills of inclusive communication with
consumers who have a different way of communicating and thinking.
She also took the opportunity to leave the easy read
brochures there and felt sure from her conversation with the
consumers they know about their Rights and how to alert someone if
they have concerns.
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Networking
creates education opportunity for Deaf
Rest Home ~ Networking ~ Deaf & Hearing
Impaired
An advocate made a visit to a rest home to introduce herself.
She was fortunate to be able to meet the facility manager and
introduce herself and explain her role. The manager made the
advocate feel very welcome and expressed great interest in the
advocate's role.
In addition to consumers who are Deaf or hard of hearing,
the Manager advised that the home employed two staff members with a
hearing disability. Both are deaf and wear hearing aids.
As one staff member was on duty at the time of the
advocate's visit, the manager introduced the advocate to the deaf
staff member. The three were able to have a productive
discussion on effective communication with Deaf/deaf and hard of
hearing people. The outcome of that discussion is that the
advocate received an invitation to provide an education session for
residents of the home.
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Education
& networking reaches core community groups
After establishing a regular network with the local
Taiwhenua, an advocate was invited to provide an education session
to a group of forty-five staff from the Hauora provider
organisation.
In the month following the training the advocate engaged in a
number of networking sessions with various provider staff who had
attended the session. As a result of establishing these networks
and maintaining ongoing contact, the advocate was invited to
present another Advocacy/Code of Rights session at Te Taiwhenua,
this time with fifty Kaumatua from around the
Ngati Kahungunu region.
It is networking and education sessions such as this that
spread the word to local people who may have need of the assistance
advocates can provide.
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Stars of the Day
Effective Networking ~ MPs ~ specialist advocates
The local MP's office had previously contacted the advocacy service
for support for a constituent with a complaint about her new
GP.
Consequently, when the Parliamentary support workers for all of the
MP's within the City held a Network Day, the advocate
was invited to speak about the Nationwide Health and
Disability Advocacy Service, the Commissioner's role and the
Code.
Three advocates attended as it provided an excellent opportunity to
introduce our Deaf advocate, talk about our refugee migrant
advocate and to show a power-point outlining our various roles
working with consumers and how we deal with complaints. We also
gave information about our roles supporting consumers, visiting
residential homes, and giving educational talks about the Code of
Rights.
The session was lively and many questions arose regarding our
service. Many of the support workers were keen to know our
contact details. We received a very positive email saying the
feedback from the staff who attended was so positive and that "You
guys were the stars of the day"!
Strategic
Networking scoops up three education sessions
An advocate attended a network meeting hosted by a day programme
for users of mental health services. This network had been set up
some time ago but there had recently been major staffing changes
and the advocate felt it was a good opportunity for some strategic
networking to reconnect with the provider and the consumers using
the service.
Specifically, the advocate intended to offer some education
sessions for the consumers and this was discussed with the manager
at the meeting. The suggestion was taken to the members'
meeting that afternoon. The advocate followed up that same day with
an email thanking the manager for taking the suggestion to the
members, and the next day the manager replied.
The programme members had asked for three specific contacts - a
lunchtime presentation for members at the day programme, an evening
presentation for members who now work, and the opportunity for an
advocate to be interviewed by a member, in their community radio
spot, to discuss the role of advocates.
The advocate was delighted that the targeted and strategic
networking was so positively received and resulted in three
education sessions for consumers.
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Residential
Visits to Children's Homes
An advocate visiting residential homes encountered a group of
homes for children of primary school age who would be too young to
engage with an advocate on their own.
After discussing options with the intellectual disability
residential provider it was agreed that the advocate would be
invited to speak at the annual family forum days each September.
This would provide an opportunity for relatives of the children to
meet the local advocate, and to learn about the Code of Rights and
the role of the advocacy service.
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top
Residential
visits make access to an advocate easy for residents
Networking ~ Residential
visits ~ Vulnerable people
A new residential service
had been added to an advocate's list to visit. The advocate
contacted the Manager by phone to introduce himself. He told the
manager about the role of an advocate and the purpose of
residential visits to make access to an advocate easy for the
residents. A date to meet was agreed.
When he arrived there were
three managers waiting to meet him. He quickly established that
they were apprehensive about the nature of the visits. He was able
to put them at ease very quickly by explaining how the residents
would find it very difficult and in most cases impossible to
contact an advocate.
As the advocacy service has
a mandate to be available to all consumers of health and disability
services it is appropriate for advocates to be pro-active and go to
those who are not able to come to them.
This explanation reassured the managers. They then took up the
offer of free advocacy education sessions for both consumers and
staff.
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Value of
networking
An advocate was invited to set up a display at a "Seniors'
Health Expo." In an effort to attract people to the display,
the advocate laminated slides from the presentation "Being an
Active Participant in your own Health Care", to put on a display
board. They looked very effective and made an attractive backdrop
to the pamphlets and handouts on the table.
The Expo also proved to be an effective way for the
participating groups to get to know one another, providing an
opportunity to share information with each other about their
respective roles. This resulted in the advocate getting several
enquiries about staff training as well as information about new
networks. The advocate gave out many business cards and soon
after was pleased to receive an invitation from a practice manager
at a rural medical centre to attend their monthly practice meeting
to talk about the Code of Rights and the role of an
advocate.
This session was attended by all of the registered nurses and
administration staff, including two who came in from annual leave.
The advocate considered her participation in the Expo had been
worthwhile as a very effective way of networking.
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First visit to
residential facility
An advocate phoned the manager of a residential facility to
introduce herself and her role and to arrange a date to make her
first visit. When she arrived, three managers were there to greet
her and it quickly became obvious they were apprehensive about the
visit.
As a result of experience and confidence in what she had to say
the advocate was able to put them at ease very quickly, and she was
booked for education sessions with both consumers and staff.
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Complaint
results in strengthened networks
The consumer had attempted self advocacy by writing and speaking
with a specialist who they felt had not spoken or treated them
well. The consumer felt their concerns were not being listened to
and approached the Brain Injury Association for support to write to
the Health and Disability Commissioner. The Brain Injury
Fieldworker referred the consumer to the local advocate, who met
with them, explained her role and the options available. The
consumer wished to write to the Commissioner so the advocate and
consumer worked together to send the complaint to the
Commissioner's office.
As a result of this joint action, the consumer invited the
advocate to come to the Rural Resource Centre where they worked and
to provide the centre with information about consumer rights and
the role of the advocate. During this visit the consumer told
the advocate about a network group that met in the local area every
two months that would benefit from having the advocate attend.
The consumer suggested this to the co-ordinator of the network
and the advocate was invited along to the next meeting. Attendance
at that meeting resulted in the advocate being invited back to
provide information on advocacy and the code of rights at a future
meeting.
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Familiarity
through networking assists consumers open up
An advocate was invited to attend an activity centre to provide
an education session for a group with dual diagnosis.
There was effective interaction between the residents and great
interest shown in the discussion. The consumers were very clear
that they were happy with their current provider but were open and
honest about past experiences and challenges they face with getting
appointments. The session was very interactive and the group showed
a level of trust in their discussions which has come about as a
result of regular similar sessions.
Those who had current concerns were encouraged to discuss these
with the advocate outside of the education forum.
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Networking with a Health Provider leads
to Education
An advocate spoke to a health provider
at a DHB about general issues that refugee and some migrant
communities face in NZ, such as culture, discrimination,
communication, consent, family relationships. The advocate linked
each of these to the Code.
Following their conversation the
advocate was invited to provide three education sessions in other
departments who in turn referred her to other hospital
departments.
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Opportunity
for training on the Code
Prompted by the mention of the Code of Rights poster that had
been put up the year before, the manager of a service mentioned to
an advocate that she was president of a nationwide
organisation. This led to a conversation about how the Advocacy
service and the Code could be promoted to the membership groups
using local advocates. They worked on a strategy that would
see Advocacy providing both local and regional training
packages.
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Assistance for social
worker
Complex disability ~ Social worker ~ Service coordination ~
Cooperation between providers ~ Advocate mentor
During a network meeting an advocate was approached by a social
worker regarding a consumer he was working with who had multiple
chronic conditions, and was involved with a number of providers and
community support agencies.
The social worker expressed concern about the lack of
cooperation between the providers and the difficulties this created
for the consumer.
The advocate provided information to the social worker on Rights
in the Code that could help the situation, and was available in a
mentoring role when contacted by the social worker as further
issues arose.
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Establishing a network of
local advocates
Assertive networking ~ Service improvement ~ Shared learning
~ Local advocates ~ Reflection
The local health and disability advocates had been fielding
requests for training and support from other advocates working with
local community agencies.
A meeting was organised with four key advocates working in
agencies who believed the standard of advocacy practice could
improve if there was appropriate training and support. These
advocates expressed concern about the quality of the advocacy they
saw being practiced by colleagues in the community and that it was
based on confrontation. The group believed the solution lay with
the local advocates and that change would occur if various
alternative approaches to advocacy were demonstrated. The group
called a meeting, advertising it as a lunchtime event at a local
church hall.
The opportunity to meet was greeted with enthusiasm and a large
number of advocates turned up on the day. Following a brief
introduction about the purpose of the meeting the local health and
disability advocate presented an overview of the consumer-driven,
strengths-based empowerment model of advocacy that the health and
disability advocacy service use, including the outcomes for
consumers.
The proposal from the meeting was to setup a network, called a
forum. Those present agreed to meet bi-monthly to reflect on the
various approaches to advocacy that were being used.
After two years the meetings still continue. They cover health,
education, welfare, housing and income. The local health and
disability advocate only attends sporadically as is often out of
the city when the meetings are held. The network continues to
provide an opportunity for reflection, learning and sharing in a
way that helps consumers to receive a more effective service.
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Networking Chatham Islands
Style
Network development ~ Chatham Islands ~ Remote location ~
Local contacts
Networking on an offshore island can be a challenge particularly
when the island is not easily accessed. Being an annual and
expensive trip it requires careful preparation by the advocate.
Over and above getting there, sorting out where to stay, setting up
meetings and knowing where to advertise the coming visit, she had
to ensure that when she got there she would be accepted by the
islanders, and that they would be interested in her message.
The advocate started with her own personal networks, phoning all
the people she knew on the island asking for their assistance and
advice. Some of these people set up meetings for the advocate to
meet and greet the locals. The local newspaper inserted an article
on the service and advertised the pending visit. The hospital was
contacted and arrangements to meet key personnel were
scheduled.
Once on the Island the advocate visited as many of the local
people as she could so she would be well known and remembered as
the person to contact on the mainland. She searched out key people
who would further facilitate access to local groups. She listened
to consumer issues; assisting them to take up these issues in ways
that could bring about changes to health and disability
services.
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Networking in residential
homes
Assertive networking ~ Residential disability home ~
Tailored message ~ Respectful contact
Residential homes for those with significant impairments have
their own culture and power structures. The residents tend not to
accept outsiders unless they are people they believe they can trust
and feel safe to speak with.
When the health and disability advocate first visited a small
community house of five people, an arrangement to visit was made in
advance. On arrival, the advocate acknowledged the staff, and
sought their assistance to greet each of the residents individually
using first names, taking an opportunity to express interest in
each person and discussing something of specific interest to
them. This also involved accepting a cup of tea as a sign of
hospitality.
The next time the advocate returned, it was timely so the
residents could remember the previous visit. More information was
shared which helped establish a relationship with each of the
residents. The advocate was gradually absorbed into the network of
the house as someone who is safe to speak to. In the meantime the
link with the staff was strengthened so they in turn would support
each resident having links with the advocate.
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Using the CAB as an
established information hub
Strategic networking ~ CAB ~ Information resource ~ Training
volunteers ~ Regular contact
Recognising the Citizens Advice Bureau (CAB) as a key
information hub in the local town, the local health and disability
advocate sought out an opportunity to be included in the
information resource provided by the local CAB volunteers. Having
visited the local CAB offices the advocate sought out the name and
location of the regional trainers and arranged to attend their next
meeting to describe the role of the advocate and how to contact an
advocate.
The advocate keeps in regular contact with the CAB offices,
dropping in to check there are leaflets available, and to talk over
any issues the staff have. The CAB continues to refer a steady
number of consumers to the advocacy
service.
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Working within a local interest focused
network
Strategic networking ~ Alcohol and drug workers ~
Established network ~ Highlighting rights
The workers in the local alcohol and drug services have a well
established network of people and agencies who meet on a regular
basis to share information, changes in service and generally to
support each other. It is a long meeting but every person attending
has an opportunity to share information and to raise issues.
The local health and disability advocate attends and uses this
opportunity to be proactive in raising consumer rights issues, as
well as responding to questions and observations made by other
attendees. It is an opportunity to harness local commitment to the
promotion of consumer rights, and for the workers to remind
consumers experiencing difficulties of the existence of the
advocates.